engleski

Family Quality of Life-Narrative approach through collecting the life stories with parents of children with disabilities

This research is based on collecting life stories with parents of children with disabilities. The aim was to conceptualize the basic domains of quality of life of families with children with disabilities and to address the role of society in life experience of these families. Also the findings indicate the level of information families have about guaranteed rights, give the information about the initiatives that parents have in ensuring their rights and their expectations from support system. Life Course Event History Model was used to get insight into the significant events and turning points in the life course of the families and factors that have shaped the life experiences as well as further possibilities and expectations. The construction of this model was useful for evaluation of practice and service delivery in the field of disability and to improve decision making, community and policy practice. Specific social context that defines life course of these families represents the influence on societal inequities in society. Based on these findings some new research questions were opened and certain directions for further research in the area of quality of life of people with disabilities were shaped.

family quality of life, narrative approach, life stories with parents

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