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Pregled bibliografske jedinice broj: 519053

Časopis

Autori: Budimir, Danijela; Polašek, Ozren; Marušić, Ana; Kolčić, Ivana; Zemunik, Tatijana; Boraska, Vesna; Jerončić, Ana; Boban, Mladen; Campbell, Harry; Rudan, Igor
Naslov: Ethical aspects of human biobanks: a systematic review
( Ethical aspects of human biobanks: a systematic review )
Izvornik: Croatian medical journal (0353-9504) 52 (2011), 3; 262-279
Vrsta rada: pregledni rad
Ključne riječi: ethics; human biobanks; genetic databases; informed consent; minor; data exchange; privacy; commercialization; ethic boards; public trust
( ethics; human biobanks; genetic databases; informed consent; minor; data exchange; privacy; commercialization; ethic boards; public trust )
Sažetak:
Aim was to systematically assess the existing literature on ethical aspects of human biobanks. We searched the Web of Science and PubMed databases to find studies addressing ethical problems in biobanks with no limits set (study design, study population, time period, or language of publication). All identified articles published until November 2010 were included. We analyzed the type of published articles, journals publishing them, involvement of countries/institutions, year of publication, and citations received, and qualitatively assessed every article in order to identify ethical issues addressed by the majority of published research on human biobanking. Hundred and fifty four studies satisfied our review criteria. The studies mainly came from highly developed countries and were all published in the last two decades, with over half of them published in 2009 or 2010. They most commonly discussed the informed consent, privacy and identifiability, return of results to participants, importance of public trust, involvement of children, commercialization, the role of ethics boards, international data exchange, ownership of samples, and benefit sharing. The focus on ethical aspects is strongly present through the whole biobanking research field. Although there is a consensus on the old and most typical ethical issues, with further development of the field and increasingly complex structure of human biobanks, these issues will likely continue to arise and accumulate, hence requiring constant re-appraisal and continuing discussion.
Projekt / tema: 216-1080315-0293, 108-1080229-0140, 216-1080315-0302, 108-1080315-0255
Izvorni jezik: eng
Rad je indeksiran u
bazama podataka:
Current Contents Connect (CCC)
MEDLINE
Scopus
SCI-EXP, SSCI i/ili A&HCI
Science Citation Index Expanded (SCI-EXP) (sastavni dio Web of Science Core Collectiona)
Kategorija: Znanstveni
Znanstvena područja:
Temeljne medicinske znanosti,Kliničke medicinske znanosti
URL Internet adrese: http://hrcak.srce.hr/index.php?show=clanak&id_clanak_jezik=106379
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3118708/pdf/CroatMedJ_52_0262.pdf
URL cjelovitog teksta:
Google Scholar: Ethical aspects of human biobanks: a systematic review
Upisao u CROSBI: dbudimir@mefst.hr (dbudimir@mefst.hr), 8. Srp. 2011. u 12:57 sati



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